Being a registered non profit organization and charitable institution exempt from tax under Section 88 of the Inland Revenue Ordinance, Hong Kong Association for Cleft Lip and Palate is the one-one in Hong Kong that provide support services for patients with cleft lip/palate and their parents / caretakers, as well as pregnant mothers bearing affected babies. We are also members of Hong Kong Council of Social Service, Alliance for Patients Organizations and Hong Kong Committee on Children’s Rights.
We aim to gather the patients and parents in the territory under one roof and provide a wide range of services designed specifically for them to ensure healthy physical and psychological growth of the patients.
Our services include: counseling service ; consultation hotline; hospital & home visits to affected newborn babies and patients after surgeries; newborn patients’ parent groups; providing on sale and lending of specially designed milk bottles and caring items; feeding training; medical & special topic seminars; sharing sessions about surgeries/treatments; district mutual-help groups; school and community educational activities; parent-child educational programmes; interest classes for caretakers; network building recreational activities; providing cleft lip & palate baby caretaking information; publication of information leaflets, newsletter & special journal; offering books, newsletters, newspaper clips, video-tapes for borrowing.
Our follow-up service projects include:
- Non-surgical correction for newborn CLP babies – Give guidance to parents on application of lip tape and nasal elevator which help to reduce the severity of initial cleft lip, cleft alveolar, as well as nasal deformity, that may facilitate surgical repairs to achieve a better result.
- Nasal splint follow-up service – In cooperation with maxillofacial laboratory we provide nasal splint follow-up service to help correct the patients’ collapsed nostrils so as to improve their appearance.
- Resident Speech Therapy Service – In cooperation with a children development centre we provide follow-up speech therapy to correct speech problems of cleft lip and palate children during the golden learning period (18 months – 6 years of age) and help them to catch up the normal learning pace. Between October 2016 and September 2017 this service is sponsored by JEMS Learning House.
- “Along the Way with You” District Support Service Team – Providing by trained veteran parent volunteers ‘one-to-one’ experience sharing and emotional support to help new parents taking care of their cleft lip and palate babies.
- 【Cleft Lip & Palate Treatment Charity Project】- Jointly organized with “Hong Kong Multidisciplinary & Holistic Centre for Cleft Lip and Palate” of Evangel Hospital. This project aims to help the patients of 18 years up, who has been waiting for treatment at public hospitals for over three years but not yet rendered the service, to receive at half cost secondary revision surgeries so as to give them normal faces and functions before they start to work. Besides, 【Let Love Continue-Cleft Lip & Palate Treatment Fund】was established to provide financial assistance, 10 to 30% for each surgery, to the patients from CSSA families who wish to participate the above treatment project. The fund mainly comes from donations by beneficiaries of 【Cleft Lip & Palate Treatment Project】.
- “Love can change Life” Social Education Project – We hold an array of social educational activities including: printing various promotion leaflets, posting & up-dating on website information about orofacial clefts, organizing social education exhibitions, displaying educational posters on MTR platforms and producing promotion video for Roadshow, which aim to increase the parents’ knowledge about clefts, how non-surgical lip & nose molding for new born affected babies can help improve their appearance, and the one-stop service provided by HKACLP so as to encourage pregnant mothers to accept their unborn cleft lip and palate babies. Besides, we enhance the understanding and acceptance of the general public towards the patients so as to foster an inclusive society with equal opportunities to the every one of us.
We do not have subvention of any kind, 70% of our fund comes from Flag Day fund raising activities and donations by members of the public, the rest from application for funding on project basis.